Wilson - Pretty fly for a small guy

This is Wilson and he is 4.

Written by Wilsons mum, Sara x

He had a postnatal diagnosis of trisomy 21. As parents we knew nothing about it - this was all new to us.

To say Wilsons birth was fast & furious was an understatement - his arrival , an unplanned home birth - delivered by daddy on our lounge floor in the early hours of the morning caught us by surprise, no midwife present only a young inexperienced phone operator telling us that the paramedics were on their way and what to expect - it was a million miles away from the pre planned induction that was due to take place two weeks later.

Our baby was in a rush to get here and after just 14 mins we sat in awe at our little bundle of joy. What followed was a bit of a blur. The midwife came and went after doing some checks on us both, we had arranged to go to the hospital the following afternoon for a paediatrician to check him over. During the day we noticed Wilsons hands were turning a bit blue for a short time then returning to their normal colour again, this happened quite a few times.

Having some time to study his features checking for family resemblances, somewhere in my mind I thought it looked like Wilson had Down syndrome and I mentioned it to my husband.

He quickly put my mind at ease and said he didn’t see any thing to worry about but at the hospital the following day the nurse confirmed my suspicion.

When we told her our fears and asked did our little boy have Down syndrome - she said yes. She said that she was sorry and didn’t know how to tell us. She was grateful we brought the subject up!

We mentioned his hands turning blue and he was immediately taken from us for testing - we were told to prepare ourselves for the worst! A few days in hospital having tests and assessments proved nothing more than a blood infection and confirmation of Trisomy 21.

We frantically spent the early days searching the internet for any mention of it, wiping away tears as the realisation was beginning to sink in.. our son had Down syndrome... we weren’t crying because of the diagnosis - for that was never a problem.

We were upset because we were bombarded with outdated images and terminology - nothing seemed remotely positive. That’s when we knew we had to find other parents in the same situation and join groups to get a better clearer picture of what the future had in store. That’s when it all changed and life with Wilson didn’t seem quite so daunting.

We quickly realised that Wilson was nothing like those out dated images and his life was to be a million miles away from the scare stories the books and internet portrayed. He was Wilson... a little boy with big blue eyes and a mop of golden hair. He had a clear bill of heath and a presence that was hypnotic.

He was happy (although not all the time - as the stereotypical notes would suggest) but his persona was that of pure joy. He instantly lit up a room. As he got older his laugh was infectious and the diamonds that shone in his big eyes were beautiful and mesmerising.

From day one we knew we had to share him, share him with other families, families who needed some help and reassurance. Things were not going to be scary like we first thought but it was going to be different and it’s ok to be different. We realised we would be taking things at a slightly slower pace, but that’s all part Wilsons journey and that’s ok too.

Wilson is currently non verbal, but he communicates by using Makaton & signalong .

He attends a Welsh mainstream school, he goes to gymnastics and loves to dance.

Not bad for a little boy that the medical books had pretty much written off.

It's now his mission to educate people on the positive side of Down syndrome through his campaign pictures he shares on fb & Instagram, and like everything else he does, he will do it in his own unique style.